Praying for the light at the end of the tunnel

2 Oct

20131002-095341.jpgWe are finally on our way to Michigan!!

I have not updated the blog in a long time. It’s not because I have not wanted to, it’s just because I have had absolutely no time.

I have a two year old whose day is one constant tantrum. (And that’s another post for another day. Actually, no, I wouldn’t do that to you.) Not to mention an 8 month old who is glued to me like a tree frog. (Probably because she’s scared of the constant screaming coming from the two year old.)

(I would like to take this moment to apologize to all the mothers in the world. If I ever saw you in public with a screaming toddler and thought, “get control of your kids,” or “my kids will never act like that,” I AM SORRY. And to all the people who see mothers (or fathers) in public struggling with their screaming kids & have those thoughts, have a little pity. Lend a hand or something, but don’t stare. Trust me, your day may be coming. Sorry….waaaay off the subject. I’m chasing rabbits, Ray. : ) )

Anything I would have posted lately would not have been about our life, that’s for sure. I don’t like writing depressing stuff & I’m sure you don’t want to read it.

But now we are on our way to Michigan & I KNOW things are going to get better. They have to or else you may find MB & me both in a mental hospital.

Dr. Boxer has been so wonderful already and we haven’t even met him yet. We correspond via email about different things regarding Rosalie or myself at least once or twice per week. He is going to see me as a patient too. I am neutropenic, but nowhere near as severe as Rosalie is. Plus Rosalie has other issues on top of the neutropenia. Dr. Boxer initially planned to do bone marrow aspirations on both of us Fri morning, but he emailed me yesterday and said I did not need it. I asked him a few questions & he immediately responded. He is the best doctor! He said he just wanted to do some “blood studies” on me instead. But Rosalie will still have hers at 7:30 am & then we will see him at 1 pm Fri.

I hope I do not have completely unreal expectations, but I fully expect to go up to Michigan, maybe get orders for neupogen injections & IVIG treatments for Rosalie, and once we are home & her counts are up & steady, we can take her out & live a somewhat normal life. Please pray this or something like this happens. We cannot continue to be stuck in the house. MB & I are about to go crazy….I think we both maybe already have.

Thank you so much for the prayers for our family & also for my dad as he recovers from heart surgery.

Also…October is Down Syndrome Awareness Month!!! Get to know someone with Down syndrome! I promise you will be glad you did!

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10 Responses to “Praying for the light at the end of the tunnel”

  1. Erin McCoy October 2, 2013 at 10:19 am #

    2 year old and 8 month old right here too!! The tree frog comment made me spit out my coffee. I am so there. Hugs on that front. Prayers for answers on this trip!! Praying very hard!!!

    • sogamom October 2, 2013 at 10:22 am #

      It’s soooo refreshing to hear when someone knows exactly what you are dealing with! 🙂 Ha! Thanks for the prayers, Erin!

  2. Dawn Sheree Whiteaker Robinson October 2, 2013 at 10:37 am #

    That’s how I felt when the girls were two, & I had just had Josh… Been there, done that.. I guess that’s why the girls were in the nursery with Mrs. Ann so I could have a break..You know how that was.. But they were well behaved when they had a babysitter 🙂 But we are praying for both of you as you journey to MI and hopefully get the medical attention that you need!!!!

    • sogamom October 2, 2013 at 10:56 am #

      Thank you do much for the prayers! Love y’all!!

  3. jisun October 2, 2013 at 10:41 am #

    Oh, man, I’ve got a 24-hour-tantrum-in-a-small-body as well! So often I’m out and about just trying to run errands ignoring the screaming, and people give me the stink eye. Well, what would they do, I wonder?!

    I’ll be thinking about you on your trip, I hope this will be a break in the clouds for all of you. She’s just adorable. ❤

    • sogamom October 2, 2013 at 10:42 am #

      Thank you, Jisun!! Xoxo

  4. Penny Dinkins October 2, 2013 at 10:52 am #

    Y’all are always in our thoughts and especially our prayers, but today I am praying extra hard. Have a safe trip and get your answers. You are due for a break, and God will see you through this. I love the tree frog, we have one of those in our house as well, but I love it! I wish I could help you some way, so if you think of anything I can do, please let me know.

    • sogamom October 2, 2013 at 10:57 am #

      Thank you so much! I’m just waiting for the day that these two little tree frogs can play together!! 🙂

  5. Rory October 2, 2013 at 8:41 pm #

    I love the photo of Rosalie! Thank you for the post. Today while waiting at the doctor’s office with my son (3) and my daughter (1) my son decided to be less than his best. All while I was trying to ignore an ex-coworker who I was hoping didn’t recognize me. He was doing one of those maneuvers where they throw themselves on the ground so you can pick them up and kick at you. So embarrassing! Her son was sitting quietly playing a video game – of course! And then she said my name – I cringed! And then she said she didn’t recognize me because I had changed so much. Huge cringe! Not the best mama moment (or confidence booster) today. But I feel a lot less alone and I thank you for sharing!

    • sogamom October 2, 2013 at 8:52 pm #

      I am cringing with you! That is totally something I can relate to! Ha!

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